Yesterday,as I heard this 5 minute programme on the Bangalore station of the All India Radio( Nov 2,2018), many thoughts came to my mind.
The important message of the talk was how someone in terminal stage of cancer with very short time to live can live well.
as the speaker says( 3.30secs to 3.40secs of the audio),
” I know Ranganath that I am ill, and I know that I am critically ill, but why should I look critically ill”.
What a positive approach to life in general and the end of life situation.
Worth adapting this by all persons diagnosed with cancer and their caregivers.
The aspect of the audio is the sense of SECRECY practiced by the person with a diagnosis of cancer and the family members. In this situation, both of them are hiding the information from each other. When you hear the audio, you feel at one level amused at the two people keeping the secret.
However, there is a bigger issue in sharing of the critical information with the family and those who matter.
Unless the information of illness, treatment or the outcome is brought into the open, how an the individual or the family make the best of life and support each other.
I know from the reading of the professional literature, nearly half the families do not want the doctor to share the critical information with the patient.
My own view is that it is vital that full information is known to the person with illness and in most situation open acknowledgment of the situation leads to better support and planning for the end of life days.
i recall one of the caregiver sharing with me,
“I wish I knew that my spouse was dying, so that I could have fulfilled the last wishes”.
Please do listen to audio and share your thoughts.
Another beautiful poem related to the same thought.
MY SOUL HAS A HAT Poem by Mario de Andrade (San Paolo 1893-1945)
Beautiful poem by Mario de Andrade (San Paolo 1893-1945) Poet, novelist, essayist and musicologist. One of the founders of Brazilian modernism.
MY SOUL HAS A HAT
I counted my years and realized that I have less time to live by, than I have lived so far.
I feel like a child who won a pack of candies: at first he ate them with pleasure but when he realized that there was little left, he began to taste them intensely.
I have no time for endless meetings where the statutes, rules, procedures and internal regulations are discussed, knowing that nothing will be done.
I no longer have the patience to stand absurd people who, despite their chronological age, have not grown up.
My time is too short: I want the essence, my spirit is in a hurry. I do not have much candy in the package anymore.
I want to live next to humans, very realistic people who know how to laugh at their mistakes and who are not inflated by their own triumphs and who take responsibility for their actions. In this way, human dignity is defended and we live in truth and honesty.
It is the essentials that make life useful.
I want to surround myself with people who know how to touch the hearts of those whom hard strokes of life have learned to grow with sweet touches of the soul.
Yes, I’m in a hurry. I’m in a hurry to live with the intensity that only maturity can give.
I do not intend to waste any of the remaining desserts. I am sure they will be exquisite, much more than those eaten so far.
My goal is to reach the end satisfied and at peace with my loved ones and my conscience.
We have two lives and the second begins when you realize you only have one.